AIMED for a Cure in 2013!

Happy New Year's Eve everyone!

As 2012 comes to an end and I think back over the past twelve months - a wondereful job which relocated my children and me to a new home, town, and community, I feel so fortunate to have been inspired to help others. 

Most of the people that I am close to are people who have experienced tremendous hardships. Whether it be disease, injury, a broken family, financial strain, etc..., I've felt responsible to make a difference in their situation.  In doing this, it helped me to see solutions rather than entertain problems.  And to me, there is nothing better than seeing others happy, especially when I have somehow contributed to their happiness.

There are many people and situations that have shaped me into the person I am, but it is my sister Tera that has inspired me to make a difference in a mighty big way. 

My office at the Spain Rehabilitation Center is directly across from a building that means so much to my family and me.  Children's of Alabama is the place where my sister's life was saved and was home to my mom and Tera for nearly three years.  From her 9th grade year in High School until her Senior year, Tera battled a rare type of cancer, rhabdomyosarcoma.

I thank God each day that my sister won her battle with cancer and has been in complete remission since 1990.

You would think our family would be spared from anything more, but as we all know, disease does not spare one family over another.  In 2010, I was diagnosed with Polycystic Kidney Disease, so of course this is another disease that my family and me would like to be an epic of the past.  As you see in the photo below, people like me living with PKD experience sharp pains when tiny cysts develop and burst on the kidney(s).  People can live with only one kidney, but unfortunately, this disease has attacked both of mine.  My diagnosis was made at a young age, so with lifestyle modifications including healthy eating and moderate exercise, I should live a long and happy life with my family. 

I’m not a doctor or researcher, so I can't invent a cure for PKD, Cancer, or other diseases.  But I can be an advocate for regenerative medicine and help raise money for research.  Yes friends, this is EXACTLY what I plan to do in 2013.

To launch my efforts I made a phone call to my dear friend and ally Senator Marc Keahey.  Marc and I teamed up together in 2011 to help TJ Atchison pass an initiative in Alabama known as the TJ Atchison Spinal Cord Injury Research Act.  You can read more about the passing of "TJ's Law" here...

Marc knows by now that when I give him a call without emailing first, something is in the works.  For thirty minutes, I explained to Marc my plans to fund research that will target and eliminate every disease known to man.

To some this goal may seem unreachable, but not to Marc and I.  We have planned and reached out to those who can and will help us.  A name you've heard so much of this year is Roman Reed, and he is behind us all the way.  With Roman and Marc's support and involvement in this initiative, I know there are no limits to what we can accomplish. 

And the best part of this AIMED for a Cure initiative, is that YOU and YOUR loved ones will benefit 100% from these efforts. 

So, as we head into 2013, I want you to know there are determined people doing incredible things to make this New Year our best one yet.  I promise to update on our progress in a few weeks, but for now, I want to wish all of you a blessed and happy New Year.  Take care and much love!  ~ Tory

From a Ribbon-Cutting to a Foundation, TJ Atchison is Moving Mountains for Paralysis Cure!

November 13, 2012 was a day that TJ Atchison will treasure forever as over 100 people gathered at UAB's North Pavilion Atrium for the Open House and Ribbon-Cutting Ceremony of the TJ Atchison Spinal Cord Injury Research Program.  (*All image copyright Fred Powell)

 

 

The event began with a warm welcome and introductions by Dr. Amie McLain, Professor and Chair of the Department of Physical Medicine and Rehabilitation. Pre-recorded greetings were shown from UAB's Interim President Dr. Richard Marchase and from Dr. Robert Kimberly, Associate Vice President for Medicine and Biomedical Research (2012 – present) and the Senior Associate Dean for Research (2006-present) in the UAB School of Medicine. 

 

  

Dr. Candace Floyd, Director of the TJ Atchison Spinal Cord Injury Research Program, provided a PowerPoint which explained the Vision, Mission, and Goals for TJ's Program.

A powerful message of advocacy and perseverance, Roman Reed, President and CEO of the Roman Reed Foundation, shared his passion and motivations for raising awareness and funding for spinal cord injury research.

TJ, teary eyed and overwhelmed with gratitude for the support and guidance he has received over the last two years, took the microphone and thanked the crowd for attending this special event.

Closing remarks were given by Legislative Sponsor, Senator Marc Keahey, who paused before taking his seat to give a brotherly hug to TJ and Roman.  

 

And then came the special moment of the day, the ribbon-cutting and official launch of the TJ Atchison Spinal Cord Injury Research Program.

Bottom from Left: Bonnie Blackwell, Roman Reed, TJ Atchison
Top from Left: Tory Minus, Dr. Candace Floyd, Sen. Marc Keahey, Dr. Amie McLain

Moving Mountains: TJ ATCHISON FOUNDATION

But just an hour prior to this wonderful celebration, another mountain was moved as TJ called the first Steering Committee meeting to order for his foundation, TJ Atchison Foundation. 

From Left: Lara Keahey, Vice Chair; Tory Minus, Secretary;
Bonnie Blackwell, Member At Large; Roman Reed, Treasurer; and TJ Atchison, Chair.

We have many goals for the TJ Atchison Foundation including an expanded vision for spinal cord injury research, incorporating grant opportunities for new researchers, and other initiatives to support our cause of raising awareness and funding for spinal cord injury research.

Dr. Candace Floyd will serve as Chair of the
Scientific Advisory Committee for the TJ Atchison Foundation

With our Steering Committee established and recruitment underway for the Board of Directors, TJ's Foundation is moving at lightning speed to make a huge difference for spinal cord injury research in 2013! We’ve begun to look into holding special events for fundraising in the Birmingham area and abroad and hope to announce plans soon.

Close to TJ’s heart, his hometown of Chatom, AL is still an important part of his life. Currently we’re working to plan a fundraiser in south Alabama, so be on the lookout for more information.

TJ putting the final signature on the Articles of Incorporation for his Foundation.

Our continued presence on social media is of the utmost importance. We want to use these resources as a way to reach a large audience including those in need of support for their novel research ideas. Check out the TJ Atchison Spinal Cord Injury Research Program's Facebook Page for updates of the TJ Atchison Core Laboratory and special upcoming events at UAB.

A growing Twitter Account allows us to collaborate with other organizations such as the Roman Reed Foundation specializing in spinal cord injury research advocacy and spreading our message even further!

We’re busy planning and hope to use questions, facts and updates to engage everyone. As always, feel free to send along comments and suggestions to tminus@uab.edu. We love your input and want to include everyone in TJ's Program at UAB and in his newly launched Foundation! Take care and have a wonderful Thanksgiving holiday. ~ Much love, Tory

Ceremonial Bill Signing for the TJ Atchison SCI Research Program

From left: Senator Keahey, TJ, and Governor Bentley

Yesterday Governor Bentley officially signed TJ's bill which approved funding for the TJ Atchison Spinal Cord Injury Research Program. Sponsored by Senator Marc Keahey (D-Grove Hill), this initiative was passed by the Alabama State Legislature on May 16th which allocated $400,000 in research funding to the University of Alabama Birmingham School of Medicine.

Details of the bill and the work that we did to accomplish this goal are available here.

A recap of the ceremony

Representative Elaine Beech from Washington County, friends, family, supporters of TJ, along with Dr. Candace Floyd and other UAB staff  had the opportunity to meet with Governor Bentley and the legislative bill author, Senator Marc Keahey, for a ceremonial bill signing at the Capitol. Those of us who were lucky enough to attend the ceremony were pleased to share this special day with TJ and his family.

Governor Bentley having a private chat with TJ 

We knew that Governor Bentley was extremely busy and had many things on his agenda (such as visiting families of south Alabama who were impacted by storm, Isaac, earlier in the week), and so we expected that the ceremony would be quick. However, when the Governor came to meet us in the beautiful Old Office Chamber Room of the Capitol, he took the time to speak with TJ about his goals for being a patient advocate, then asked if we had any questions for him.

My daughter Catie, Governor Bentley, and TJ's sister Alyssa

Governor Bentley was such a gracious host. He held the hands of our little ones and encouraged them to be great students, friends, and to work hard in their schools and communities.

From left: Senator Keahey, Tucker McDonald, Anita & Carey McDonald, Governor Bentley, Representative Elaine Beech; Bottom: Alyssa and TJ

When there were no more picture requests or questions left to ask, the Governor seated himself at a desk in the center of the room and we gathered around him for the bill signing ceremony. After we had our group photo taken, the Governor handed out pens with his name on them to TJ and the children gathered around his chair.

In all, Governor Bentley spent about 25 minutes with our group. It was obvious that he enjoyed chatting with us and with TJ, as his staff finally had to inform him that it was time for the visit to end. Indeed, we were honored by the whole experience!

After tons of persistence and determination, TJ and I were thrilled to say, "WE DID IT!" 

Celebratory luncheon

Program Administrator for the TJ Atchison Spinal Cord Injury Research Program,
Dr. Candace Floyd (standing), welcomed our group to the special luncheon held at
Central Restaurant in Montgomery.
 

Of course our hearts were filled with such joy and happiness for what had been triumphantly accomplished, but our group sorely missed the company of our dear friend and ally Roman Reed .

November 11, 2011, the beginning of "TJ's Law"
 From left: Me, Bonnie Blackwell, Roman Reed, and TJ

Because of Roman's commitment to pass AB 1657 ( This bill will raise funds to sustain the Roman Reed SCI Research Fund at UC Irvine’s Reeve-Irvine Center) in his home state of California, Roman was unable to make the trip to Bama for Governor Bentley's bill signing.

TJ's program at UAB would never have been possible had it not been for Roman's instrumental roll in the formation and passing of Senator Keahey's legislation. So on behalf of our TEAM, I would like to say thank you to Roman for everything he has done to encourage and help TJ in his mission for paralysis cure.

"From Alabama to California, TJ and I fight together so that one day soon, all who suffer from a spinal cord injury / paralysis can stand with you!" ~ Roman Reed

Please stay tuned to Head in the Clouds as more pictures from this special day will be posted soon. Take care and have a wonderful Labor Day weekend!

Much love, Tory

TJ's Visit to the Spain Rehabilitation Center!

I spoke with TJ this morning, and he is still on cloud nine from yesterday's visit to the Spain Rehabilitation Center in Birmingham. This trip was important to TJ for many reasons: to build awareness for the TJ Atchison Spinal Cord Injury Research Act in Alabama; to meet doctors at the Spain Center who champion health and research for spinal cord injury; and to show his dedication and commitment to being a patient advocate for paralysis cure.

With about 15 supporters of "TJ's Law" making the trip to Birmingham, including mentor Roman Reed from the Roman Reed Foundation in California, this first face-to-face meeting for TJ and Dr. Candace Floyd was a long-awaited celebration and memorable jump start to TJ's decision of becoming a patient advocate. "I still can't believe how far we have come since that first meeting back in November," TJ said.

Just before lunch, Dr. Floyd introduced Dr. Richard Marchase, Professor and Vice President of Research and Economic Development, and Dr. Robert Kimberly, Professor and Senior Associate Dean for Research.

Dr. Marchase and Dr. Kimberly took time getting to know everyone and gave assurance that the University of Alabama Birmingham was of tremendous support for the TJ Atchison Spinal Cord Injury Research Act. "This legislation is very important for all Alabamians living with spinal cord injury, and we will be great stewards of the funds generated from it," stated Dr. Marchase.

Next up, Dr. Floyd explained the new frontiers in translational research at UAB. Her impressive powerpoint fueled our interests in the scientific dynamics of spinal cord injury research, and helped us to understand how critical funding is to take these incredible ideas from animal studies to human clinical trials. We were encouraged by Dr. Floyd's closing words: "When 'SB338' is passed and the ball is tossed to us, we are going to catch it and run with it!"

Other UAB presenters included Dr. Robert Brunner, Medical Director of the Spain Rehabilitation Center and Associate Chief of Staff; Jacquelyn Green, Director of Research Services of the Dept. of Physical Medicine and Rehabilitation; Dr. Yu-Ying Chen, Associate Professor of the Dept. of Physical Medicine and Rehabilitation, PI SCI Model System; Dr. Danielle Powell, Assistant Professor of the Dept. of Physical Medicine and Rehabilitation; Dr. Amie Jackson, Professor and Chair of the Dept. of Physical Medicine and Rehabilitation, PI SCI Model System; and Yvonne Akins, Executive Administrator of the Dept. of Physical Medicine and Rehabilitation.

Not only was Wednesday's meeting a great opportunity to bring together fellow supporters of spinal cord injury research, it was the perfect forum for exchanging innovative ideas of making this important research a priority in the state. It was a day filled with motivation, new friendships, and a common goal for all: to get the paralyzed back on their feet.

The next few weeks will determine if paralysis cure becomes Alabama Law... PLEASE SUPPORT SB338! 

*An inside look from our friends at Birmingham News ABC 33 / 40 ~ Bill to fund spinal cord injury research gains momentum in legislature by Haley Westbrook

Senator Keahey's press release for "TJ's Law!"

Very exciting news! Follow this link to read Senator Marc Keahey's Press Release for "TJ's Law."

The beginning of "TJ's Law!"

Very similar to what Roman Reed did in 1998 with the Roman Reed Spinal Cord Injury Research Act of California, the brave TJ Atchison hopes to accomplish this and more in the great state of Alabama.


Yesterday, before a crowd of fifty close family members and friends, Senator Marc Keahey announced his plans to introduce the TJ Atchison Spinal Cord Injury Research Act in Alabama. This legislation would use funds generated from traffic violations such as reckless driving and DUI to support spinal cord injury research in our state.

Shortly after explaining the framework behind "TJ's Law," Senator Keahey passed the microphone to the young man who inspired him to take such a political stance on spinal cord injury research.

With a sweet smile across his face, and a determined tone in his voice, TJ Atchison read from a crinkled piece of computer paper in his lap:

"Good afternoon! I am TJ Atchison, the world’s first participant in our nation’s first ever federally approved clinical trial using human embryonic stem cell therapy and co-author of The Human Candidate. I am paralyzed from a car accident and fighting for a paralysis cure.

In firmly believing in the love, grace and sovereignty of God in creating and embracing human life, I also believe in the justification for sustaining a quality of life for myself, the 1.8 million Americans living with spinal cord injury paralysis, 5.6 million Americans suffering from some form of paralysis and all people living paralyzed. It is my desire to convey a message of hope and peace and provide answers for why I decided to participate in the highly controversial clinical trial that began on October 8, 2010.

So now I ask for your help in making the dreams of a paralysis cure a reality by supporting the TJ Atchison Spinal Cord Injury Research Act Authored by our great Senator Marc Keahey!

Our Law will impose a small $1 added sur-charge on all moving traffic violations, $5 for aggravated moving violations, and $10 for DUI - no taxes, or State general fund withdrawals – to fund the research for paralysis cure while creating jobs and giving hope to the paralyzed – all, right here within our great home State of Alabama.

Your support will strongly impact whether or not I spend the rest of my life confined to a wheelchair or accomplish my dream of walking again. We must fund the research for spinal cord injury cure.

I ask you: PLEASE STAND WITH ME, SO WE CAN ALL STAND WITH YOU!"

After a brotherly handshake, TJ passed the mic to his friend and mentor, Roman Reed.
Instantly, the advocate spirit came shining through, as Roman educated the crowd on the importance for finding a paralysis cure.

"The very first mention of paralysis was written inside the walls of an Egyptian tomb. It read, 'deny the paralyzed soldier water, for there is nothing that can be done.' For too long, that was the truth, but not now. Not anymore! There is MUCH that can be done, that WILL be done, and SHOULD be done."

Roman then shared a quote from one of his boyhood heroes, Jackie Robinson, "A life is not worth living, EXCEPT for the impact it has on others."

In closing of TJ's press conference, Roman referenced to a letter written by the late Christopher Reeve. The words from this letter sent chills across my arms and brought tears to nearly everyone in the crowd.

Roman read with such proudness and strength the words of his hero and friend. "Christopher Reeve wrote to me shortly after my football accident, saying 'One day Roman and I shall stand up from our wheelchairs and walk away from for forever.'  Now that did not come in time for our Superman, but with your help (defining the audience), the cure will happen for me, TJ, the 1.8 million Americans suffering from spinal cord injury paralysis, and the 5.6 million Americans suffering from some sort of paralysis."

As the afternoon came to an end, it was in total agreement from the audience that this is where we go from here - the beginning of the future for research and healing!

I'd like to end by saying that it was an incredible honor and privilege to take part in yesterday's events. I am so proud of Senator Keahey - our knight in shining armor, the brave TJ, and the incredible Roman Reed for making this day happen. The brave and righteous actions taken yesterday will bring about our paralysis cure for today and tomorrow. Take care everyone, and have a great rest of the week! Much love, ~ Tory